Whiteshell Cross Country Ski Club hosts Doreen and Robert Dick Memorial Ski Tour in support of the ALS Society of Manitoba

Doreen and Robert Dick

Doreen and Robert Dick both grew up in Dorval, Montreal. In 1969, the Dicks together with their children; 5 year old Douglas and 6 month old Nancy moved to Seven Sisters Manitoba where Robert worked for Manitoba Hydro.

Doreen at the Ski Cabin

Doreen soon became an active member of the Whiteshell Cross Country Ski Club. She taught Jackrabbits, and as a competitor, represented Whiteshell and Eastman in such communities as Snow Lake, Thompson and Riding Mountain. Robert, though not the competitive skier that his wife was, also began skiing and helping with the development and maintenance of the Whiteshell Ski Trails.

In 1994, a couple of years before Robert’s retirement, Robert and Doreen moved to Pinawa. In addition to skiing they enjoyed golfing and gardening. Robert raced sail boats and Doreen volunteered at the Pinawa Hospital.

In July of 1999, Doreen began having problems with slurred speech. Doctors were concerned that she might have had a stroke, but when that proved negative, other tests were done. In November of that same year she had a preliminary diagnosis of ALS (Amyotrophic Lateral Sclerosis) also known as Lou Gehrig’s disease. ALS is a rapidly progressive fatal neuromuscular disease in which nerve cells die and leave voluntary muscles paralyzed.

Despite her deteriorating health, in February of 2000 Doreen joined other Whiteshell Ski Club members on a tour, which she suspected would be her last, of the English River, Jones Graham, and Orange Trails, stopping at both cabins for rest and refreshments. The total distance was approximately 16 kilometres.

Doreen’s suspicions were correct, this was to be her last major ski tour. Her health deteriorated rapidly over the next few months. She began to have trouble swallowing and in April of 2000, at 59 years of age, she had a final definitive diagnosis of Bulbar ALS. Bulbar ALS is a specific type of ALS where onset symptoms are in the speech, esophagus, and respiratory systems.

Madison and Doreen

In August of 2000, Doreen could no longer swallow and needed a feeding tube. As she had lost the ability to speak she used a computer with a speech recognition program to communicate. The feeding tube and the fact that she could no longer talk did not stop her from playing golf that summer, or from interacting and playing games with grandchildren, Madison, Aidan, and Riley via computer. However, her health continued to deteriorate rapidly. With the help of community volunteers and their children, Robert cared for her at home for as long as he could. But in July of 2001, when she required a ventilator to breathe, it became impossible for him to care for her at home, and she went to live at the Riverview Health Centre in Winnipeg. Robert maintained his home in Pinawa, but spent four days a week by Doreen’s side at Riverview, taking her for walks in the neighbourhood, going on tours arranged through the centre, visiting with their children and grandchildren and helping with her general care.

In the spring of 2007 Doreen could no longer use her computer and her only way of communicating was with her eyes. When even that became difficult for her, she, through her own choice, was taken off the ventilator and passed away in September of 2007.

Just prior to Doreen’s death, Robert and Doreen’s daughter Nancy Chapel, her husband Ben, and their three children moved to Pinawa. With his son Douglas and daughter-in-law Bev being nearby in Winnipeg, Robert was able to take comfort in spending time with his children and grandchildren as he adapted to a life in which he was no longer a husband or a caregiver. But within a couple of years, in 2009, Robert began noticing changes in his body. He had trouble doing simple tasks like tying his shoelaces, and experienced general weakness in all his extremities. He began to suspect that he too might have ALS. As ALS is a very rare disease (with only 1 or 2 people out of 100,000 having it) family and friends thought this to be a statistical impossibility. In the spring of 2010 he was admitted to the Pinawa Hospital with pneumonia and needed a bipap mask (which is a less invasive form of ventilation) to breathe.

Robert with Skis

After several months of testing, in June of 2010 Robert was diagnosed with limb onset ALS disease. With the help of his children, home care, and community support Robert stayed in his home for as long as possible. He still enjoyed his garden, so Nancy, Douglas, and some of Robert’s friends and neighbours planted and cared for it in just the way he wanted. In April of 2011, when he was no longer able to feed himself, he was moved to the Whitemouth Personal Care Home where he stayed until he passed away on June 19th, 2012.

No one knows the cause of ALS disease, or how this married couple both contracted the disease. Neither are they the only people from Pinawa, or the Whiteshell Cross Country Ski Club, who have been afflicted with this disease. David Johnson, son of Harry and Ellen Johnson, who lived in Pinawa as a child, and was also a Whiteshell Ski Club Jackrabbit contracted ALS at the age of 41. At this time he was living in Kelowna with his wife Shani, and teenage children Josh and Ashlea. Some Pinawanians will remember donating money, via the Pinawa Christian Fellowship and other channels, to help David and his family deal with the financial difficulties they incurred as a result of the disease. David died of ALS in 2010. (Click here for more on David’s story as told by his father)

As a way of paying tribute to Doreen and Robert Dick, as well as a means of helping people such as the late David Johnson and his family who have been afflicted by ALS, the Whiteshell Ski Club invites you to join us in our memorial tour. All donations will go towards supporting people in Manitoba who are living with ALS.

Doreen and Robert Dick

Ski tours of varying lengths will be made available for beginner, intermediate, and advanced skiers. Multiple guides will allow participants to ski at a comfortable pace.

As skiers, we in the Whiteshell Cross Country Ski Club love to see people get out on their skis, but if you don’t, or can’t ski, please consider supporting those who are participating in the tour with your pledges. Tax receipts are available for donations over $20.00. Pledge forms can be downloaded from this site as well.

The 2016 tour began with Nancy Chapel – daughter of Doreen and Robert Dick – giving a 
brief presentation on ALS disease at the Pinawa Club. Following this, 15 skiers set off on tours of 
varying length and difficulty and later returned to the Pinawa Club where they met other supporters for 
dinner. The Pinawa Club served a special from which $2.00 for each dish ordered went to the ALS 
Society. In total $1,064.00 was raised for the ALS Society of Manitoba.

The following is a copy of the presentation given by Nancy Chapel in Feb 2016: